Margie received her Parkinson’s Disease (PD) diagnosis just weeks after her 65th birthday.  Her nearly 10 years knowing she has PD have mostly been good ones.  She poured her energy, which until this past year has run high, into bringing services and an office in Bend from Parkinson’s Resources of Oregon.  

 

She is now experiencing PD progression and her health took a sudden downturn early this year when her sodium dropped to a near life-threatening level which resulted in 12 days at St. Charles. Following her hospitalization, we learned that not only those with PD are at risk: athletes or anyone who works hard in hot conditions, needs to assure that they are getting adequate sodium/electrolytes.  Margie’s brother Steve worked in the oil fields of Montana one summer during his college years and remembers the salt tablets and water bottles that were widely distributed to the workers to prevent the same condition.

 

Margie is doing better, but we have some major decisions yet to be made about treatment changes she will need to make soon.  We plan to stay in our home, thus the last month or so some minor remodeling of our home has been underway to prepare space for an elevator that we asked be part of the house design…the year before we found out Margie has PD. 

 

We’d like to ask for your financial support of the Portland-based tiny band of just nine employees (of Parkinson’s Resources of Oregon-PRO) who bring practical information/education/support to patients, those spouses who without warning become care “partners,” in-home caregivers (currently Raquel and Staci for us)…. We are especially grateful that Carol Pfeil was hired two years ago to establish a Bend office East of the Cascades.    

 

Margie and I invite you to help Parkinson’s Resources of Oregon ensure that “no one has to face this disease alone.  A donation to our team will help us kick Mr. Parkinson’s you know what . . . .”

 

Jim and Margie Lussier

Thank you for helping me reach my Sole Support fundraising goal! Sole Support raises funds that directly support local services for individuals and families living with Parkinson’s disease. This year we celebrate 15 years of this inspiring event which unites around celebrating our community.

Sole Support raises awareness for this disease and the urgency to fund the programs serving 13,000 households in Oregon and SW Washington. This event provides nearly 25% of the financial underpinning necessary for Parkinson’s Resources needs to provide education, support, and wellness classes for our loved ones.

Parkinson’s disease is the second most common neurodegenerative disorder in America, where more than 1,000,000 people live with a diagnosis. Every 9 minutes another is diagnosed. Currently there is no known cause nor cure and both symptoms and disease progression are different for every patient. The past few years have shown promising research and great advancements in care. However, there is no end to this disease on our immediate horizon.With so little known, this disease can be scary and isolating for so many.

That’s why I’m stepping out on Parkinson’s. I am committed to changing the landscape - bringing help and hope to those living with the disease. I am committed to ensuring no one has to face this disease alone.

Please consider walking with me or making a donation towards my efforts (or BOTH!). $15, $25, $50, or $500, whatever you are able to do!  I've seen how PRO directs their funds to valuable services and encourage you to be as generous as you are able. It is not often we come across the chance to make a large difference in our own backyard – helping our friends and neighbors live well with Parkinson’s.

           

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